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What we've seen over the last couple of years, and with Doddie before, is that awareness is vital. It's important that we keep banging the drum and raising funds. We need to find a cure."
If you have MND, the following resources can help you make decisions about therapies, treatments or care. Often called patient decision making aids, this type of information is about understanding the choices available and how these might affect you and those close to you. Our booklet containing information answering possible concerns about sexual expression and intimacy, for anyone affected by MND. An explanation of why we ask for information and how it is used. This sheet also explains how we protect confidentiality and your rights. Disease types
A small booklet providing a short overview of MND. An audio versionof this guide is also available. Broadcast in 2022, the BBC documentary Rob Burrow: Living with MND took an intimate look at Rob’s life with MND more than two years on from his diagnosis. The programme follows Rob on a trip to the swimming pool with wife Lindsey, cheering on his children at school sports day and an appointment with his neurologist. This is the second time Rob has generously allowed the cameras into his home to raise awareness, after sharing the first year after being diagnosed in the documentary Rob Burrow: My Year with MND, which was released in 2020. The powerful programme was shortlisted for a National Television Award in 2021. How to open conversations about your diagnosis with family, children, friends, colleagues and health or social care professionals. This guide includes information on difficult conversations, planning ahead and using advocates to help you raise awareness of your needs.
To Rob, and his family, thank you for bravely sharing your story, for raising awareness of MND, and for allowing the world to see how motor neurone disease affects thousands of families in the UK, every single day. Our information sheet to help explain some of the benefits and other types of support available to families with children.
2023 Season Review: Wigan Warriors
A gift from you today will not only help to support families living with MND, like Rob’s, but will also fund vital research in the search for a cure. With your help, we hope to save other families from the heartache of a motor neurone disease diagnosis in the future. Information about voice banking, the process of recording yourself speaking to create a computerised version of your voice for use on a communication aid. Breathing and ventilation England Rugby League's Men and Women return to international action on Saturday 29 April for the first time since last year's Rugby League World Cup - a double-header with France at Warrington which is the launchpad for a game-wide fundraising effort in aid of the MND Association. England's opponents France made a memorable gesture during RLWC2021 when they wore warm-up shirts with a message for Rob Burrow ahead of the Group A match at Bolton - and are again lending their support. A guide to help you if you have reading difficulties or learning disabilities and have been diagnosed with MND. This resource has been endorsed by Mencap.
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